Monday, May 25, 2009
The Cranial appt.
Ryan and I had gotten to the office about 9:45 for our 10 a.m. appt. The reception staff was very nice and made us feel a little more at ease. As we were waiting, another couple came out of the offices with their little boy in a DOC band. He looked so cute and his little helmet was all decorated. I smiled at him and he smiled back....I realized then that the DOC band is just something that will help his head and has nothing to do with what kind of little person he is. We were called back into the office, told to strip Nixon down to his diaper and then follow the nurse into another room. It was in this room where they took pics of Nixon's head, or as they called it...Nixon's photo shoot...lol They took all sorts of pics of his head from all angles and different directions. We went back to the room for more waiting. The Dr. then came in and sat with us and talked for what seemed like a few hours, but in all reality was probably only like an hour to and hour and a half. She recommeded that he receive and wear a DOC band for at least 3-5 months and also informed us that he also had Torticollis, which sometimes goes along with Plagiocephaly. She showed us some neck exercises to do with Nixon at every diaper change and also recommended that he receive physical therapy. She had informed us that his condition probably started in utero, which as a mom makes me feel like it's my fault. Our plan of action is to have his head digitally formed for the company to make his docband. As of today, May 25, we are currently waiting to hear from Cranial Tech to set up his appt for his scan, then 10 days after that, he will receive his helmet. He will have to wear it 23 hours a day for 3-5 months. He gets to have it off for 1 hour every day to bathe and clean the helmet. Yes, it is stressful to think he has to go through this, Yes, I feel a HUGE amount of guilt because of this and Yes, I do cry myself to sleep sometimes wondering if I could have done things differently. What I have come to realize on top of all this is regardless of what type of contraption my son has to wear, what kind of surgery he had to endure, the eczema, and the allergies, he is still the most beautiful little guy......He is still my little piece of heaven, he is my perfection, he is my son.
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Ally- I know how as a mother we feel guilty for everything. Thank you for sharing this journey and know I am by your side, reminding you of what a great mother you truly are. Nixon is so blessed. I loved what you said at the end, "he is my son" He will endure and overcome. As will you. (((Hugs)))
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