May 26, 2009
Nothing really new to report.....we are patiently waiting for the insurance company to get back to Cranial Tech and then we will schedule Nixon's 3-D imaging session for his fitting. Cranial Tech said it would probably be a week before they heard back from the insurance company. I'm hoping that it gets moving a little sooner than that tho.
Nixon has been a rolling monster lately...lol His head is defintely not holding him back from doing what he wants to do !! He is even rolling to the side that the Dr. said would be the hardest for him to roll too because of his Torticollis. I'm telling you....this little guy is simply amazing and shows us everyday that he is not your average baby :)
Anyway, I have been researching different decorating ideas for Nixon's Doc band and have come up with a few I really like.....I would also appreciate some input from my blog followers if you have any cool ideas. I've been googling looking for ideas, but I know that there are other creative minds out there :)
Tuesday, May 26, 2009
Monday, May 25, 2009
The Cranial appt.
Ryan and I had gotten to the office about 9:45 for our 10 a.m. appt. The reception staff was very nice and made us feel a little more at ease. As we were waiting, another couple came out of the offices with their little boy in a DOC band. He looked so cute and his little helmet was all decorated. I smiled at him and he smiled back....I realized then that the DOC band is just something that will help his head and has nothing to do with what kind of little person he is. We were called back into the office, told to strip Nixon down to his diaper and then follow the nurse into another room. It was in this room where they took pics of Nixon's head, or as they called it...Nixon's photo shoot...lol They took all sorts of pics of his head from all angles and different directions. We went back to the room for more waiting. The Dr. then came in and sat with us and talked for what seemed like a few hours, but in all reality was probably only like an hour to and hour and a half. She recommeded that he receive and wear a DOC band for at least 3-5 months and also informed us that he also had Torticollis, which sometimes goes along with Plagiocephaly. She showed us some neck exercises to do with Nixon at every diaper change and also recommended that he receive physical therapy. She had informed us that his condition probably started in utero, which as a mom makes me feel like it's my fault. Our plan of action is to have his head digitally formed for the company to make his docband. As of today, May 25, we are currently waiting to hear from Cranial Tech to set up his appt for his scan, then 10 days after that, he will receive his helmet. He will have to wear it 23 hours a day for 3-5 months. He gets to have it off for 1 hour every day to bathe and clean the helmet. Yes, it is stressful to think he has to go through this, Yes, I feel a HUGE amount of guilt because of this and Yes, I do cry myself to sleep sometimes wondering if I could have done things differently. What I have come to realize on top of all this is regardless of what type of contraption my son has to wear, what kind of surgery he had to endure, the eczema, and the allergies, he is still the most beautiful little guy......He is still my little piece of heaven, he is my perfection, he is my son.
The referral
I got the referral call from Cranial Technologies shortly after his surgery and scheduled a consult for May 21. Now for the wait........
Surgery Day
May 12, 2009
Surgery Day !! We woke up about 4:30 a.m. and headed to Phoenix Children's Hospital. We got there about 5:45 and the center opened at 6, so we took a stroll around the beautiful campus. At 6 a.m., we headed into the center to check in....at 6:20, we were taken back to pre-op for them to get some info and check his stats. He started getting fussy since he hadn't eaten since 9 p.m. the night before. The nurse gave him a cute little clown gown to change into and handed me a soothie binky. I dressed him in his little gown and stuck the soothie in his mouth....within minutes, he was asleep. At 7a.m. I watched my 4 month old go through the heavy metal doors that lead to the sterile surgery room. As a tear rolled down my face, I knew that we had made the right decision for him. I went back out to the waiting room...and waited and waited and waited. At about 8 a.m., they called me back to the recovery room. The nurse said that the procedure had gone really well and that she hoped I had brought a bottle since he was starving....lol My little man endured a harsh surgery and was still my little piggy when he woke up....lol He was a super trooper through the surgery !!! I got back to recovery and he was downing a bottle of Pedialyte. The nurse handed him to me and I gave him his bottle. We sat there for another 20 minutes, then they discharged him. We walked out of the surgery center at 8:20 a.m.
His recovery has gone well and he is back to his happy little self :)
Surgery Day !! We woke up about 4:30 a.m. and headed to Phoenix Children's Hospital. We got there about 5:45 and the center opened at 6, so we took a stroll around the beautiful campus. At 6 a.m., we headed into the center to check in....at 6:20, we were taken back to pre-op for them to get some info and check his stats. He started getting fussy since he hadn't eaten since 9 p.m. the night before. The nurse gave him a cute little clown gown to change into and handed me a soothie binky. I dressed him in his little gown and stuck the soothie in his mouth....within minutes, he was asleep. At 7a.m. I watched my 4 month old go through the heavy metal doors that lead to the sterile surgery room. As a tear rolled down my face, I knew that we had made the right decision for him. I went back out to the waiting room...and waited and waited and waited. At about 8 a.m., they called me back to the recovery room. The nurse said that the procedure had gone really well and that she hoped I had brought a bottle since he was starving....lol My little man endured a harsh surgery and was still my little piggy when he woke up....lol He was a super trooper through the surgery !!! I got back to recovery and he was downing a bottle of Pedialyte. The nurse handed him to me and I gave him his bottle. We sat there for another 20 minutes, then they discharged him. We walked out of the surgery center at 8:20 a.m.
His recovery has gone well and he is back to his happy little self :)
The Beginning
May 8, 2009
What was supposed to be a usual 4 month check-up before surgery turned out to be another story. The PA that did his check-up was a little concerned with the shape of his head. She said it was slight and might require a DOC band, but didn't commit to it because it was so minut. She told me that she would call with a referral to Cranial Technologies, who specialize in plagiocephaly. I left the office confused and saddened. Not sad because of the outcome, but sad because of what Nixon has had to endure since birth. My heart hurt, but I know that our journey had just begun.
What was supposed to be a usual 4 month check-up before surgery turned out to be another story. The PA that did his check-up was a little concerned with the shape of his head. She said it was slight and might require a DOC band, but didn't commit to it because it was so minut. She told me that she would call with a referral to Cranial Technologies, who specialize in plagiocephaly. I left the office confused and saddened. Not sad because of the outcome, but sad because of what Nixon has had to endure since birth. My heart hurt, but I know that our journey had just begun.
Subscribe to:
Posts (Atom)
